Home comforts...sheer bliss

Friday Greetings Everyone,

Everyone ready for the weekend?

Thanks guys for popping by, just to start with some very good news...we are now home for a little while and it still feels rather strange being back although now just starting to settle into the comforts of home.

Phoebe has done very well today, the IV chemotherapy given this morning has made her very tired indeed, she was looking slightly pale on the journey home, we prepared in anticipation in case we needed to stop. Throughout the journey Phoebe was very quiet, occasionally taking a nap and with a gentle voice guided her Dad home!!

Before we left today, Vicki, our lovely nurse for today spent some quality time with me explaining all the details of the medication that we need to give at home....my goodness there was a huge amount but we both worked through it. It’s a fair extensive regime with up to 19 doses each day but it’s what we have to do to keep Phoebe well in her preparation for transplant due 26^th August 2010. Thanks Vicki and Tricia for your help and lovely care for Phoebe today, much appreciated xxx

Due to the steroids Phoebe is still eating like a horse and her face has bloated a little along with her tummy, she is looking more like her sister everyday as Eleanor had fuller cheeks. Phoebe’s food of fancy from yesterday has been noodles, she loves them...mainly chicken flavour so off to the Chinese supermarket tomorrow to check out their range!!

Gwen and Geoff joined us for dinner tonight and it was a delight to share a fish and chip supper with them followed by a cup of tea made at home...aaah bliss.

It may have been a little overwhelming for Phoebe tonight as she just wanted to sit on the couch for a little while, later I persuaded her to go and take a look at her bedroom to see if it’s just how she left it. As Phoebe has had a big day, I ran a bath but she didn’t want to sit down, so it was a quick wash standing up but I could tell she just wanted to have a lie down in her own bed. Tonight I have seen for the first time that conscious sheer pleasure on my daughters face of what it feels like to be home and in your own bed...she loved it bless her.

Well folks it’s very late now and I have to go and give her a final dose of medicine for the day...so will keep it brief and I’ll catch you tomorrow.

Have a great day tomorrow Gemma and David as they celebrate their Wedding with a wonderful garden party with family and friends. So sorry we cannot be with you but look forward to seeing you both very soon. Much love xxxx

Thinking of you all at the hospital...wishing you all a restful sleep.

Rest easy dear friends

Much Love

Lynn, Ade, Phoebe and Spirit Eleanor xxxx