Transplant Day +71 - Continuing The Recovery At Home

Hi there Bloggers,

Hope this sunny Saturday morning finds you all well and ready for the weekend!

Welcome everyone and what a great week it has been, especially as we have taken the opportunity to head out for a walk each day with the weather settling a little and rewarding us with a smidgen of sunshine!! Here's Phoebe in preparation!

After Phoebe’s appointment on Tuesday we received a call from Rachel one of the nurses that we would need to return to Manchester on Thursday to have Phoebe’s bloods re-taken as her Ciclosporin levels had increased considerably. After a little confusion, Rob Wynn confirmed to us to reduce the dosage and he would just see us the same time next week, much to our huge relief…obviously it's absolutely no problem heading to Manchester if we have to but if I had a preference….it would be to avoid the hospital all together even though they are all really nice there!!!

Since Tuesday, Phoebe has been really well. We have made a few trips to the local hospital and received a visit from the community nurses to have the NG tube re-inserted but otherwise she is doing remarkably well and keeping us active..especially when we are following her around with the feeding machine attached!!

Phoebe has been enjoying herself playing shop, reading, counting and generally singing all around the house! We will try and film Phoebe singing ‘I see the moon and the moon see’s me!!’. She is aconstant a source of entertainment and this morning I took the opportunity to have a lie for about……5 mins! but it was pure bliss listening to Phoebe playing and talking to her cheeky monkey and pooh bear blanket, she sometimes re-enacts conversations that we have had, its so funny hearing her repeating things I say to her. We have had plenty of ‘okey dokey’s’ and she is now calling Ade, ‘Adey Daddy’ particularly when shouting to him downstairs!! Phoebe now knows her surname and my name too now, it is very bizarre to hear her calling us by our names, we much prefer Mummy and Daddy having missed it so much after Eleanor passed. Phoebe is such a joy to be around and constantly keeps us laughing and entertaining the troops!!

Our troops have been with us each day popping by and keeping our spirits up as well as keeping us fed with tasty home cooked food and being constant blessing in our lives. As I said earlier, it’s been nice to get out and about this week and the troops came along too. We enjoy strolling around the avenues and checking out all the houses, gardens and driveways…oh geez I’m going to stop now before someone commits me for living life on the edge!!! Thinking aloud now…on the house front…we are thinking of having floorboards across the loft space with a new entrance to it above the landing……anyone have recommendations…let us know in the comments…that would be marvellous thanks!!

Friends have popped in for coffee this and we have been lucky enough to catch up and spend time with Theresa and Debbie, who are two old school friends of mine, its great to reminisce and catch up. As we are still in isolation and it seems to be a long time since seeing our friend’s children and Theresa brought a gorgeous picture of Darcy, Debbie’s and I are Darcy’s God-Mother’s, gosh she has grown so much!! We had plenty of laughs and it was really great to catch up with you guys xx

Last night, Helen, Andrea and Estelle came over for a long over due to catch up, the evening didn’t quite go as planned but we had a lovely time. Phoebe was settled in bed and just as Ade was leaving to head over to the Whitehurst residence, Phoebe was really sick and her tube came out. The girls arrived and were brilliant helping out with Phoebe, they came with me to the hospital and were a wonderful support, the evening concluded feeling far more relaxed and enjoying the chat at the kitchen table over a slice of pizza… Our lives are full of blessings and the girls play such a huge part for which I’m so truly thankful xxxx.


It was nice to see Margaret this morning who popped by for a visit, it was lovely to see her, Phoebe was a little tired so Margaret took the opportunity to have a cuddle on the rocking chair!! (right)

This evening I am very pleased to announce some wonderful news of a new arrival for our friends Sheena, Richard and little Isobel. Baby Archie Duncan arrived safely on 18th February weighing 9lb 6oz – Well done Sheena!! And Congratulations to you all! Much love xxx

Well guys, heading off now for a few days but we will be back on Tuesday which happens to be Shrove Tuesday…Pancake Day!!!, so post your favourite pancake fillings in the comments section and we can all try them out…we’ll be back then for another round up of news from the weekly clinic but for now guys, take good care and we look forward to catching up soon.

For Archie….welcome sweetheart... xxxx

‘Sweet souls around us watch us still,
Press near to our side;
Into our thoughts, into our prayers,
With gently helpings glide.

Harriet Beecher Stowe

Much love...rest easy folks,

Lynn, Ade, Phoebe and Spirit Eleanor xxxx