Transplant +2 - The Road to Recovery....

Welcome Bloggers to this very relaxed Saturday evening.

Hope this post finds you all well and many thanks again for your very entertaining posts on the blog. They always give us a smile and I'll come to them later.

We are all OK here, thanks. Phoebe is doing well and all of her medicines are now through the IV lines. This means that she is now confined to her IV pumps (Type 1, Type 2), and therefore her cot, far more often. Despite all the massive changes that have happened to her daily routine at home she is coping remarkably well. We notice that Phoebe is having times during the day where she is quite bubbly and alert, wanting to play and showing interest in her books (above) and especially her toy cup of tea. At other times she will become a little tired and just want to be cuddled. The nurses, who have had years of experience looking after BMT children, reassure us that even though every child reacts differently the symptoms are roughly the same. It is just a case of getting through these first 14-18 days or so after the bone marrow transplant.

Each time the nurses pop in to take Phoebe’s obs. she is always so accepting with a welcoming smile, especially when Rachel starts to do her apron dance!! Phoebe doesn’t really like having her blood pressure done as it is quite uncomfortable on her leg but she enjoys the ripping sound of the Velcro when she takes it off!! Phoebs is maintaining a steady, normal temperature today although her BP has been a little elevated. This is to be expected considering all of the medicines she is receiving, especially the Ciclosporin.

It was lovely to see Mum and Dad today; Phoebe was asleep when they arrived but woke not long after. My Mum could tell Phoebs was a little unsettled in herself and after a little play she nursed her next to the cot. She soon drifted back off as she was then very comfortable.

Unbelievably it has been almost a week since I have left the unit and I started to get a real muzzy head. Ade has been asking to take me out for some lunch for a break for a few days now, but it is hard to leave Phoebe when she is feeling unwell. It is important to have a break and breathe the fresh air as you don’t realise how much you have missed it until you go out. Ade and I went to a restaurant called Isis which is only mile from the hospital; we had a lovely bowl of pasta and some garlic bread….Garlic bread? It’s the future, I’ve tasted it!!! :o) . The days roll on and, before you know it, time has flown by and we're getting Phoebe settled in her bedtime routine again.

Guys, I so wished to write more tonight, but it's late and Phoebe is becoming very unsettled. I feel that she may have some sickness on the way...and…well I know you’ll understand….

Thanks so much again for the lovely questions and comments; we’ll catch up on them tomorrow if that’s OK. For now, we wish you all a restful sleep and a relaxing Sunday morning.

'In that City all the citizens shall be immortal, men for the
first time enjoying what the holy angels have never lost.'

Saint Augustine

With love xxx