Transplant Day +14 - It's Christmas!!!

Good Evening Everyone and Thanks for joining us on Christmas Day!!

We hope you have all had a lovely day and now settling down to a restful evening after all the euphoria!

Santa came to visit us last night saddling in on his famous Santa Scooter, ringing his bell and popping in to see everyone. He very kindly brought each of the children a sack full of toys! We were careful not to wake Phoebe as it was quite late when she settled and based on her last reaction upon seeing Santa, we thought it best not to give her nightmares!!!

Ade stayed over here last night so it would be nice to for us all to wake together. We slept ‘ok’, being tucked up on a single camp bed…aaah brought back memories. Ade heard every bleep of the machines and Phoebe woke a few times in the night as her stomach is very tender. Nice thought but Ade is heading back to his pad tonight for some quality kippage!!

Phoebe was so lovely this morning; I think she was aware there was something different happening. We excitedly told her that Santa had been and she pointed to the bag and said "Toys!". Aaah it was super, throughout the morning we were teaching her to say "Ho Ho Ho" to the nurses!

Throughout the day we relaxed. We had a leisurely breakfast and Ade, wanting us to enjoy all of the luxuries Christmas Day brings, organised a fabulous Christmas lunch for us. Not leaving any detail to chance he remembered everything…sumptuous!!! Phoebe’s appetite hasn’t really returned yet but this is normal, although she is trying to eat things. As I said earlier, her stomach is still very tender and this is normal. Phoebe is still having her nutritional support.

We began to open some of the mountains of presents we have received, absolutely fabulous gifts, we were so humbled by it all. We'd barely sorted through a quarter of them and Phoebe was getting really tired.

Rob Wynn popped in on us this morning to wish us all the best for the festive season and inform us that he was extremely pleased with Phoebe's bloods today. He also said that, at the rate Phoebe is going, it's a possibility that she may not need any more blood transfusions and it was now a mainly a case of gradually getting her to take food and meds. orally again. He popped in to see us again at around 8pm to check if all was still OK. This, of course, was on Christmas Day and as we've said before the level of care here is just phenominal.

Later, Gary came to visit and he was really pleased that Phoebs was out of semi-isolation. He was chuffed to be able to hand her his and Lisa’s presents and have a hug. We have enjoyed our time today, it’s not been as stressful as I’d imagined.

Even though Christmas is meant to be relaxing, kicking back after all the euphoria, Ade and I can’t believe how tired we feel; it’s been rather exhausting not doing very much!!! We managed to take a nap early evening and, glad to say, Phoebe was asleep much earlier tonight. She’s a little restless with her tummy but should sleep well with some more IV Paracetamol.

Thank you so much for all your good wishes, gifts and cards; it’s just been so much better than we envisaged.

It’s been lovely to hear everyone’s plans and we hope you all enjoyed your Christmas lunch and the company. There are so many people out there without our luxuries, it reminds us of our blessings.

For now Dear Friends…

‘Joyful all ye nations rise, join the triumph of the skies; with the angelic host proclaim Christ is born in Bethlehem.’

Charles Wesley

Wishing you all a restful sleep.

With love,
Lynn, Ade, Phoebe and Spirit Eleanor xxx